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发布8月1日2025/08/01 05:26
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Doctors didn’t believe I was in pain until I brought my husband. Then they stopped talking to me altogether. I have CRPS—Complex Regional Pain Syndrome. It’s one of the most painful conditions known to medicine. Mine started after a knee dislocation. Instead of healing, it turned into constant, burning nerve pain that spread through my body. It’s been over a year now, and I am mostly bedridden. I’ve been through dozens of appointments, specialists, emergency visits. And the pattern is always the same: they don’t believe me. I’m a woman in pain, so I must be anxious. Dramatic. Depressed. I must not really understand what I’m feeling. I’ve had doctors roll their eyes. I’ve been told to “breathe through it.” One told me I was “too focused” on the pain. So I started bringing my husband. And then… they believed him. Not me—him. The same symptoms I’d described for months were suddenly serious when a man repeated them. But instead of acknowledging both of us, they’d start directing the conversation toward him, as if I’d become the unreliable narrator of my own body. Being a woman in pain feels like being on trial in your own body. You have to defend your symptoms, your tone, your emotions. If you cry, you’re unstable. If you’re composed, you can’t be hurting that badly. And if you’re a mother? The guilt is relentless. My daughter wants to play, but even her touch burns. I’ve lost everything I used to be: my career, my mobility, my self-image. And I still have to beg to be taken seriously. I’m writing a book about all of this—about CRPS, about what it means to be a woman whose pain is dismissed until it’s too late. I’ve left the link in the comments if you’d like to read or support. www.reddit.com/r/TwoXChromosomes/comments/1md10wr/doctors_didnt_believe_i_was_in_pain_until_i/source